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- author: charming-devil
score: 3
text: >-
How I put my Ulcerative Colitis into long-term remission (personal experience)
I was diagnosed with Ulcerative Colitis (UC) in 2012. From 2012 to 2017, I dealt with flare-ups and depended on
medication. Since 2018, I’ve been completely symptom-free and eventually stopped taking medication under my own
judgment. I’ve now been in remission for several years.
This is not medical advice just my personal experience with what worked for me.
What I changed:
1) Diet and exercise
I cleaned up my diet and made a journal, after lots of trial and error I ate selected food that didn't made my flare
up worse, also made regular exercise a habit. Nothing extreme just consistent healthy eating and staying active.
This alone made a noticeable difference in my energy, digestion, and overall inflammation.
2) Supplements
My regular stack:
Multivitamin
Probiotic
Omega-3
ZMA
Vitamin D3 + K2
During my active UC days, I took these daily. Now I take them about 3-4 times a week or on alternate days.
3) Intermittent fasting (major factor for me)
I do 24-48 hour fasts once or twice a week.
Originally, I started fasting simply because eating and digestion felt uncomfortable during UC. Over time, I noticed
that fasting significantly improved my symptoms. I believe it helped my gut rest and may have supported healing and
better gut flora balance.
Fasting was the biggest turning point for me.
I’ve been symptom-free since 2018 with no medications and normal daily life. UC may not be “curable” in general, but
in my case, lifestyle changes especially fasting, diet, and consistency put it into long-term remission.
Again, this is just my experience. Everyone’s UC is different, and what worked for me may not work for others. I’m
sharing this in case it helps someone explore lifestyle changes alongside medical care.
Edit 1 - Again this is not a medical advice. THIS IS WHAT I DID WHICH WORKED FOR ME. I didn't stop my medication
suddenly, when I was in remission I gradually decreased the dose to see how the body was reacting. When I felt
healthy I stopped completely.
Edit 2 -
... [truncated]
type: POST
- author: UlcerativeColitis-ModTeam
score: 1
text: >-
**Your post or comments has been removed because it violates [rule
4](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.**
Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis
without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or
can be cured with xy. While these are just examples, making any claims about health without scientific evidence can
be dangerous and misleading.
We understand that you may be passionate about your beliefs, but we ask that you please respect the rules of this
subreddit and refrain from making claims that are not supported by science. If you would like to appeal this
desicion, please send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).
type: L0
- author: ChronicallyBlonde1
score: 61
text: >-
Listen, I went through this phase too, back in 2018. No medication, vegetarian whole foods diet, exercising 5 days a
week, supplements galore (Vitamin D + B12 + turmeric + L-glutamine + fish oil). Wheatgrass daily. Intermittent
fasting daily (6pm to 12pm). I know all of this because I wrote it down - it’s still in the notes app on my phone.
Guess who still ended up in the hospital with a severe UC flare 6 months later??
type: L0
- author: charming-devil
score: 1
text: ' > Why did you stop your medication ? I stopped my medication over a period gradually when I felt confident I could do it then i stopped. After my remission I gradually dropped doses and stopped taking medication in a span of 3-4 months till today. Thank God 🙏🏻'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: Even-Yak-9846
score: 0
text: ' > How long did your remission last?'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: xiggy_stardust
score: 14
text: >-
People should be cautious about interpreting this as advice. I’ve seen posts on here where people have done this
exact thing and ended up hospitalized because they decided on their own to stop taking any medication.
I’m sure most of us would love to not have to take any meds, especially given the potential side effects. But when
you stop taking meds in spite of doctors advice, you do so at your own risk.
type: L0
- author: charming-devil
score: 0
text: ' > You''re right, everybody is not the same and this is not a blueprint. Try it yourself and see how your body reacts. Good luck'
type: L1
- author: ghoultail
score: 9
text: >-
Genuinely wondering how severe your flares were because most days I can barely manage to get out of bed let alone go
and work out
type: L0
- author: charming-devil
score: -2
text: ' > They were pretty bad, bloating and bleeding, due to UC even suffered with urticaria. That''s the reason i stopped eating coz I usually suffered when I ate. Fasting helped me a lot.'
type: L1
- author: monachopsisfilms
score: 26
text: Stop falling for AI slop
type: L0
- author: dogsop
score: 7
text: ' > And stop the magical thinking that you can cure an autoimmune disease with exercise and fasting.'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: charming-devil
score: 0
text: ' > This is not AI lol'
type: L1
- author: ''
score: ''
text: ' [+2 more replies]'
type: L2
- author: tieflingteeth
score: 15
text: >-
With all due respect, I don't think that your regime is generalisable. I'm also not sure that this regime is the
reason why you haven't flared in this time.
While evidence in mouse models of IBD suggests a benefit from IF, human studies of IBDers during Ramadan have failed
to corroborate any benefit. With IF there is a particular risk for IBDers of worsening existing malnutrition and
fatigue. Choosing IF is highly personal and I think it's concerning to come to a sub with a significant proportion
of starving people and uncritically present further food restriction.
I'm all for a balanced discussion of the evidence for and against IF to treat IBD, but you will find people on the
Internet claiming that their IBD was healed by anything from crystals to seafood. Your personal account is not
compelling anecdata and we should be discussing real scientific data here
type: L0
- author: charming-devil
score: 1
text: ' > I am not selling any courses. I am sharing what I did. Fasting doesn''t kill anyone. Japanese cell biologist Yoshinori Ohsumi was awarded the 2016 Nobel Prize in Physiology or Medicine for his discoveries of mechanisms for autophagy, a process often triggered by starvation or fasting. His research showed how cells degrade and recycle their own damaged components, a crucial, life-sustaining mechanism.'
type: L1
- author: ''
score: ''
text: ' [+2 more replies]'
type: L2
- author: Ok-Lion-2789
score: 3
text: >-
Yeah so as someone who does IF for other reasons, takes my vitamins and eats pretty well and works out, def did not
stop my flares from coming when they did. What got me back in remission? Changing my meds.
type: L0
- author: charming-devil
score: 0
text: ' > Of course medicines are important. My other routine supplemented my medicines. Also don''t forget probiotics. Keep your gut flora healthy and you will be amazed how fast your body heals.'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: Choice-Fuel-9785
score: 4
text: >-
This is interesting, because i've noticed that during inflamation and flares that i also feel a lot better if i just
don't eat.
type: L0
- author: charming-devil
score: 1
text: ' > That''s what I noticed, if there is no food in my stomach there is nothing to digest. I would not feel the need to pupu or at least I can delay it. The moment i ate i would feel this urge to go to the loo again and again.'
type: L1
- author: NefariousnessIcy3430
score: 3
text: >-
How does fasting affect exercise? I do high intensity workouts and going on an empty stomach would probably affect
me.
Also, do you eat carbs? Curious
type: L0
- author: charming-devil
score: 2
text: ' > Now I am eating everything in a healthy way. I even eat junk food from time to time which was a rarity before. Personally for me i got use to it so I don''t feel tired while working out infact feel more energetic. I feel sleepy when I eat lol. During my UC days I used to workout fasted in the morning so I used to take BCAA during working out ( zero sugar ) and black coffee before workout. I ate mostly eggs and chicken boiled without any condiments as i started suffering from urticaria too. So after a lot of dos and don''t i would eat selected and limited food that wouldn''t trigger urticaria or make flare ups worse.'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: adxmskii
score: 10
text: >-
Love these kinds of posts. The impact of diet, lifestyle, and particularly the gut microbiome on the management of
UC is massive. This sub is generally gets super defensive, but I find it empowering that we can help ourselves
beyond a reliance on medical intervention.
type: L0
- author: WeyP96
score: 42
text: |2-
> There's nothing to get defensive about but most people typing these posts don't recognize how complex the topic of diet is on UC and how many different schools of thoughts there are regarding it.
>
> Ask three different people on what diet they have during a flare and all three will tell you something different.
>
> Some say to get on a fibre and vegetable rich diet, others will have their symptoms worsened on such a diet and opt for avoiding fibres, yet others say you shouldn't eat anything but animal products.
>
> That's why it's great to document what helped you on your journey, but you should always remember that diets are always going to be highly individual for each person.
type: L1
- author: ''
score: ''
text: ' [+3 more replies]'
type: L2
- author: Starshopper22
score: 29
text: |2-
> There is nothing empowering about some reality that doesn’t exist. OP’s way of thinking is extremely dangerous because people with uc will get the feeling that it’s their fault they are sick. “Oh you have colitis? It’s your fault you should have eaten better”. There is not 1 good research that concludes that food has anything to do with inflammation in the gut. UC is an auto immune disease. The second point about supplement is ofcourse a load of horseshit. The third point is even more dangerous because most people with UC are already having problems eating and maintaining a healthy body weight and getting all the nutrients. Fasting will only worsen this.
>
> I just absolutely hate these kind of posts because it implies it is our fault we are sick
type: L1
- author: ''
score: ''
text: ' [+2 more replies]'
type: L2
- author: monachopsisfilms
score: 13
text: ' > These posts are bad because they''re fake and AI written.'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: Ok-Raspberry-2567
score: 8
text: ' > 1. Medication 2. Diet/lifestyle/microbiome. It is definitely a combination!'
type: L1
- author: charming-devil
score: 1
text: ' > Exactly. What I did isn''t rocket science. Try yourself. It worked for me hope it works for others too. Needless to say Don''t stop medication till you get cured. Also I feel people getting defensive are definitely pharma implants or doctors.'
type: L1
- author: jhinboy
score: 1
text: >-
How exactly do you do the fasting? Coffee, tee, juices yes/no? And do you feel like you got used to it to the point
that it does not majorly incapacitate you on those days? :D I have a stressful job and 2 small kids and am basically
wondering whether I can manage to integrate this into a hectic schedule.
type: L0
- author: charming-devil
score: 1
text: ' > Fast for 16-18 hours. I usually skip breakfast. I eat once at 2-3 pm full stomach and then at around 8-9 pm again full stomach. I don''t like to munch in between but sometimes I do. When i wake up in the morning I start sipping water till my lunch and have some black coffee ( without sugar ) That keeps you hydrated. No juices as they have calories. Also don''t take one eat fruit instead. Juices are empty sugar calories.'
type: L1
- author: oyecomowa
score: 1
text: >-
Hey man, thanks for sharing your experience , I follow the similar path without leaving medication. I wonder in you
decide just on your own or your doctor also agreed on leaving the med? And do you still do regular check to ser if
there is an increase in your inflamation level?(like calprotectin)
type: L0
- author: charming-devil
score: 0
text: ' > Thanks bro, wishing you the best. My doc said I will have to take medication all my life even if I got cured which I found amusing. I didn''t consult my doctor. I gradually dropped my doses over some weeks to stop completely to see how my body was reacting. Luckily it just stopped and then i stopped taking the medicines but not the supplements.'
type: L1
- author: Flat-Fisherman-8773
score: -1
text: >-
This is really useful and motivating to know. I started to change my diet this week. Initially things became worse
but after a few days I can already see an improvement.
Thanks for posting this.
type: L0
- author: charming-devil
score: 2
text: ' > Happy for you brother, continue your meds, journal what you eat everyday and how your body reacts. Eat food and supplements that are rich in probiotics that will heal your gut flora. Also try fasting. Good luck'
type: L1
- author: Marius_Gage
score: -10
text: >-
I often wonder if UC is diagnosed incorrectly and a bunch of us are just like allergic to some food we eat.
I’m currently on predesinone (spelling!) & Salofalk and feeling the best best ive felt in years.
But I’m also taking steps to lose weight, working out, lifting weights going on longer walks, stress and sleep
management and eating better healthier foods. I also intermittent fasting, 8pm-10am.
I’d like to add a longer fast of 24-48 hours weekly but I don’t know I have the will power.
type: L0
- author: charming-devil
score: 2
text: ' > Fasting won''t kill you, you will only feel more energised. Try it. In fasting you can take water and some herbal teas without sugar or milk. When you feel hungry take some herbal tea it will subside your hunger. Fasting is magical. Even a japanese scientist got a nobel prize in 2016 for discovering the effects of autophagy. Read about it.'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: BrucetheFerrisWheel
score: 1
text: ' > What about a clear fluids fast? I had to do that for 5 days for diverticulitis and it wasn''t that bad. Lost a couple kg too!'
type: L1
- author: ''
score: ''
text: ' [+1 more replies]'
type: L2
- author: BeneficialAnything15
score: 1
text: ' > Eggs are a definite trigger for me'
type: L1
- author: xM1XU
score: -7
text: |-
I recommend watching "Hack Your Health: The Secrets of Your Gut" document in netflix.
It gives good insight to understansing how gut works and how diet impacts it. Maybe it will help some of you!
type: L0
- author: charming-devil
score: 2
text: ' > I watched it and it just readdirmed my beleif. All these people getting defensive are definitely docs and from pharma industry lol'
type: L1
- author: Spudmeister20
score: -5
text: |-
Great post 👏 it makes me want to stay on my diet seeing these type of posts
You’ll get many of the diet police on here all the time I just ignore them 😂😂
type: L0
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